There is a celebration today of volunteering and random acts of kindness being promoted by the Daily Telegraph. Do Something Day is initiative to remind people, a couple of minutes is all it takes to make a difference in someone else’s life. This is the same theory behind paying my 40th birthday forward and raising awareness of hydrocephalus to my family, friends and people who share this post. So if you don’t have the time or opportunity to help an old person across the street then simply just share our message about Hydrocephalus.

While I am an avid volunteer, today I will be spending my do something day focussed on Miss K. We have our regular MRI checkup that the Cerebral Spinal Fluid in her brain is flowing sufficiently and the ETV performed by our neurosurgeon, just over two years ago is still open and working correctly. Miss K will go under general anesthetic tomorrow for between 1 to 2 hours, we have been preparing ourselves and Miss K for this since it was requested in March.

So as far as our five-year old is concerned a MRI consists of funky hospital gowns, colourful playroom and a little sleep while they take photographs of her brain. And yes a bag full of treats for being nil-by-mouth since midnight last night (skipping breakfast is strange when your five!).

So don’t think for a minute that this is a negative day for us – we always approach treatments appointments and anything related to Hydrocephalus as only a positive experience for Miss K. We never show her that we are worried ( we may get a bit antsy the day before, but we keep it to ourselves) it’s just another day as we are the lucky ones. It is our job to keep reminding you of other families who spend weeks (not just a day) in hospital with their children who have the same condition as Miss K – this is important and if you have nothing to do today then #GiveYourBest for Hydrocephalus.

Do it Share or Comment on this post, Donate to either Paying40Forward Donate Page or you can also directly donate to the Hydrocephalus Support Association who help families just like ours.