It is so encouraging when we take up a fight for awareness and our message about the Australian Shunt Registry starts to infiltrate those that need to hear about it. As I mentioned last week I wrote to all my local candidates in the federal election. I received a heartfelt response from our Labour Candidate, Mrs Rhonda Funnell, she will be forwarding a copy of my letter to the Shadow Minister for Health, The Hon. Catherine King. They are currently developing their health policies moving into the election and so it is very timely that our message is being heard now.

I have also had a meeting request from the Liberal Candidate Mr Jason Falinski. I hope this will happen shortly. So madly preparing myself to best represent the needs of the Australian Shunt Registry so we can continue to raise awareness with the people who will potentially be representing us in Canberra. I will definitely keep you posted on the outcomes of the meet-up.

In really awesome news….

The Hydrocephalus Support Association announced over the weekend that due to some awesome fundraising by the association they have made a $5000 donation to the Neurosurgical Society of Australasia to help fund the $60,000 a year cost of the Australian Shunt Registry.

The NSA has advised that a manager of the shunt registry has been appointed and is assisting with the ethics approval process with the Sydney Children’s Hospital Network before data collection commences at Sydney Children’s Hospital and The Children’s Hospital at Westmead.

We are very lucky to have the HSA working so hard to help all Aussies dealing with Hydrocephalus.

Event planning is underway… 

The fundraising event planned for August is slowly coming together with a number of local suppliers coming on board to assist with the night and The Sydney Swans have already sent us a signed jersey to hopefully help in our efforts. So let me know if you want to get involved in supplying the event – we are always happy for the help!